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Study Registration

Registering Your Study

Registering your study is a simple, three-step process:

  1. Request access
  2. Complete study registration
  3. Enter study-level metadata into CEDAR

How to request access

Overview

The HEAL Data Platform provides a single interface where users can browse and search for all HEAL-funded studies as well as other HEAL-relevant datasets. In this way, the Platform plays a fundamental role in making HEAL data findable as part of adhering to the FAIR data principles (i.e., data should be Findable, Accessible, Interoperable and Reusable).

To achieve this goal, the platform aggregates metadata about each study from multiple sources. One of these is NIH RePORTER from which basic information about all HEAL-funded studies is automatically obtained. However, there are three additional sources of metadata which the Platform can utilize:

To permit the Platform to pull information from these sources, a study must be registered. Registration is the process of linking a study to one or more of the metadata/data sources listed above. This process can be performed by the Principal Investigator or another member of the research team.

What if I'm not ready to submit data yet?

You may register your study at any time, even if you are not yet ready to submit data to a repository. Registering your study increases its visibility on the Platform and allows the Platform and data repository to anticipate and plan for your subsequent data submission.